NORD

NORD is a leading independent patient advocacy organization dedicated to improving the lives of individuals and families affected by rare diseases. Through comprehensive programs spanning education, advocacy, research, and patient support services, NORD is committed to fostering the identification, treatment, and eventual cure of rare disorders, creating tangible value for the entire rare disease community.

NORD’s collaborative approach extends across patients, families, medical professionals, researchers, and over 350 member patient organizations. We foster a culture of unwavering commitment, working closely with government agencies like the NIH and FDA to drive progress. As the official U.S. sponsor of Rare Disease Day, NORD champions global awareness. We invite you to learn more about our vital work.